14/05/2024
Posting another miraculous story of Adina Cunningham, who is 32 days post filum terminale op from the institute of chiari in Barcelona. I wanted to highlight her story as it’s is slightly different from others who have traveled to the ICSEB. Adina has lived 11 years with a debilitating chronic autoimmune disease, that had a sudden and sharp post-viral onset in February 2012, after a bout with pneumonia. Due to this health crisis, Adina was forced to leave her position as an attorney and started seeing some of the best doctors in the world. Like Jen Brea of “Unrest” Netflix fame, she met every single criteria for ME/CFS which she was diagnosed with and thought she had.
Six months ago, her spinal pain skyrocketed and could no longer walk. Her legs were going numb from the knees down, and was terrified of paralysis. Not only that, but her mast cell disease was making it difficult to eat all but the most bland of foods, or to go outside without having an asthma attack. In desperation, she remembered that Jen Brea had gone to a specialized institute in Barcelona. All of the other options for her were expensive and involved re-shaping or fusing bone, or brain surgery. So she researched and took a leap (her husband, family, and supporters were critical to her decision) with the Institut Chiari & Syringomyelia in Barcelona. Dr. Fiallos Rivera, the neurosurgeon, worked with at the Institut, was kind, knowledgeable, compassionate, and sharp. The facilities were beautiful, his care beyond anything she had ever experienced. Adina’s story continued in comments
