08/26/2026
Please help us in making sure our JJP Crew member, Elliott, is safe at night! 💙
Elliott is only 2 years old, and his parents are afraid to go to sleep 💔
Born with spina bifida, hydrocephalus and other complex medical conditions, Elliott has already endured seven surgeries by the time he was 18 months old.
Now, his seizures are becoming increasingly serious.
They’re lasting 10 minutes or longer, sending his family back and forth to the ER and specialists as doctors work to figure out why they’re getting worse.
And nighttime is especially terrifying.
His parents can’t physically stay awake watching him every minute of every night.
But they’re scared of what could happen if Elliott has a prolonged seizure while they’re asleep.
That’s why they’re hoping to get a SAMi nighttime monitoring system.
It can monitor movement while Elliott sleeps, alert his parents to sustained abnormal movement and record events that could potentially give his doctors valuable information.
It’s not a medical device and cannot guarantee seizure detection. But an alert could help his parents recognize a potentially dangerous event sooner.
And this isn’t just about peace of mind.
Elliott’s parents need to sleep, work, homeschool, manage medications and appointments, and care for their other medically complex son.
They simply cannot be awake 24 hours a day.
For Elliott, that help could make a very real difference.
His parents have spent two years fighting for their little boy.
Now, they need their community to stand beside them 💙