Haunted heights

Haunted heights Contactgegevens, kaart en routebeschrijving, contactformulier, openingstijden, diensten, beoordelingen, foto's, video's en aankondigingen van Haunted heights, Fotograaf, Liège.

The little ghost 🗝️Polaroids of my friend, Lis (July 2023). | You can be my muse too & book a session 🤎 |— https://myhau...
29/07/2023

The little ghost 🗝️

Polaroids of my friend, Lis (July 2023).

| You can be my muse too & book a session 🤎 |

— https://myhauntedheights.com —

06/06/2023

A portrait of a fellow Belgian artist & friend, Mégane Likin, from July 2019, taken for my series 'Ophelia'. It was a beautiful collaboration that I still hold really close to my heart... Film used: Kodak Portra 400. Camera: Nikon FM2n + 50mm 1.8

30 🗝
11/04/2023

30 🗝

the veiled sacrifice (self portraits, 2023) 🗝Part of an ongoing series about EDS. myhauntedheights.com
08/04/2023

the veiled sacrifice (self portraits, 2023) 🗝
Part of an ongoing series about EDS.

myhauntedheights.com

the veiled sacrifice series (self portraits, 2023)__Recently, I was diagnosed with hEDS (hypermobile type of EDS). As al...
31/03/2023

the veiled sacrifice series (self portraits, 2023)

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Recently, I was diagnosed with hEDS (hypermobile type of EDS). As always, I wanted to express myself through art & raise awareness. Most of the time, it’s an invisible disability, which a lot of us fight alone for way too long, and I aim to shed some light on it, in the only way that I know how. Photography has been therapeutic for me—for the past 7.5 years it has allowed me to share my feelings & connect with people going through similar life experiences. With this new series, I hope I can help you see the unseen for a moment.
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For those who don’t know, the Ehlers-Danlos Syndromes (EDS) are a group of 13 heritable connective tissue disorders. These are caused by genetic changes that affect connective tissue. Connective tissue is found throughout the body, where it provides support, protection, and structure to other parts of the body. Collagen is the primary component of connective tissue. (There are different types of collagens with different functions.) The Ehlers-Danlos syndromes are caused by changes in the genes that affect the structure and function of collagen and related connective tissue proteins.

Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility. (source: The Ehlers Danlos Society)

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Having hEDS comes with a set of features* like: joint hypermobility in both large (elbows, knees) & small joints (fingers, toes) / soft, smooth skin that may stretchy and bruises easily (+ takes a long time to heal) / chronic musculoskeletal (muscle + bone) pain / frequent joint dislocations and subluxations (or partial dislocation) / gastrointestinal issues / POTS (palpitations, dysautonomia,…) / chronic fatigue (sleep disorders) & exercise intolerance / migraines or headaches & brain fog / dental issues / …
*not everyone with hEDS will experience all of these.
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Living with hEDS means that I constantly have to battle my own body—most days, I wake up in pain & I go to bed in pain, having not done anything to deserve it. It’s always there somehow. Even if I try to avoid it at all costs. Growing up I had issues with my knees (got a growth disease called Osgood-Schlatter disease), I dislocated my left elbow as a kid, & I had lots of pain I couldn't explain (back then we thought it was just "growing pain").

It’s an invisible battle & it gets lonely sometimes. From the outside, I look perfectly healthy & it can create frustrating & uncomfortable situations—people assume that because I seem to function ‘just fine’ it means that, surely, it’s not that serious and I’m just lazy. But they don’t see the sacrifices, the missed opportunities, the lost hours spent in bed. The "why am I like this" moments.

I just hope that this series open up some conversations, even if only in my circle, and that people will be more empathetic to invisible struggles so that, one day, we might have better access to care & the accommodations that we need.
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More info on EDS can be found on this website: https://www.ehlers-danlos.com/

En Français: https://gersedbelgique.com/

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