12/13/2022
To all who care
My life is crazy at times and difficult but I wouldn't change it for the world. So please keep in mind that when I have to move your session I have someone who really needs me that day
Hello from Ashton (update)(my baby)
He will be 3 in February. Yesterday we got a diagnosis which is very very rare only less then 400 people in the whole world have it.. crazy i know. So this is still very new and none really knows how or what about it. we will know more about it when we talk to the doctor in person
There is no cure or medicine to help
Since he was 3 month I knew something wasn't right and with endless doctor visits, mri's which found brain damage, miss diagnosed nystagmus and way more questions then we ever got answers to, we got the call with some genetic testing results
I was heart broken for him. Still am and pretty sure always will be.
I'm his mom Christina and I am dedicated to make his life the best everyday even tho I get tired at times and frustrated with all the weekly doctors visits
Right now I feel lost, with the Doctors/Specialist/early intervention not knowing how to help or what I can do to help him more but I will and have to power though it. The past 3 years have been so much growth and learning FROM HIM on what is right and works for him ☺️
He brightens his 2 sibling, hubby and my world with his smiles and happiness
Being kind and supporting each other makes the world spin and the sun shine bright 🌞