13/06/2026
I developed sudden onset post-viral ME/CFS in 2020. It took my identity along with most of things I needed & loved - partying, dancing, working memory, executive function, weight training, swimming, long walks, retorative sleep, cycling, high energy gym classes and much much more.
I bought a box full of exciting things 2 years ago. I haven't been well enough to open it until now.
My love for photography has both frustrated and kept me alive through all of this in equal measures. Not being able to shoot events without putting myself in bed for 5 days after is not the one! It's taken me a long time to let go of that passionate dream.
It's also been about 2 years since I realised the only way I was ever going to stand a chance of getting some sense of self back, would mean radical acceptance of my new disability and adapting my whole life to fit the new me. But who is he? I'm still finding that out.
The opening of the box is going to be a new journey, I have no idea what I'm doing with the contents. It's a learning journey on many levels and I'm going to share parts of that with you.
