06/13/2026
Some personal photos for some personal updates!
Health: I realized I never really shared what my official dx is. I have what's called PGNMID. Don't ask me to write out what that stands for, I can't even pronounce it 😂 Essentially my bone marrow decided to produce toxic protein which in turn injured my kidneys. I say injured instead of destroyed because I've gained back almost 50% of my kidney function, which is honestly insane. At the beginning of the year I was prepared to be on dialysis (even had the surgery for at home peritoneal dialysis) and eventually undergo a transplant.
My hematologist prescribed me a 6 month course of treatment which consists of two little shots in my belly every Friday. It could be so much worse so I'm thankful for this. The hard part is that my treatment is in Birmingham which is 3.5 hours one way. While I don't necessarily feel poorly after my treatments the drive really takes it out of me most days.
The good news is that treatment will be over next month, assuming I'm in remission. The good news is that my kidney function is so much restored that I won't need dialysis or a transplant any time soon. The good news is that I'm feeling like a person who is capable of living life in a beautifully normal and simple way. I'm so thankful for the doctors and the medical staff who have helped me get to this point. And I'm so incredibly thankful for all the prayers and good thoughts coming from this little community I've built. Y'all really are amazing and I could not be more thankful to be connected to you, however distantly.
2026 is almost halfway over and I'm expecting this second half to be so incredibly amazing and healing. Cheers to health!
