Michelle Leigh Photography

11/23/2025

A Year Later…

It's hard to believe we have passed the one-year mark since this journey for our family began. We have learned a lot this year about taking life a little slower, enjoying the little moments each day and just not waiting to do the things on the bucket list. We have learned to tell people we love them every day, give a lot of hugs, laugh when we can, reach out to the people we miss....

It’s hard to believe we have passed the one-year mark since this journey for our family began.  We have learned a lot this year about taking life a little slower, enjoying the little mom…

09/01/2025

“Tears come from the heart and not the brain.” -Leonardo da Vinci This is a different type of post for me but one that I hope will resonate with you. Before I start, Aurora stays stable and is still battling nausea and exhaustion. We continue to have Sunday night visits with Luna which is a weekly highlight. We aim to keep upbeat, but last week was especially challenging....

“Tears come from the heart and not the brain.”                 -Leonardo da Vinci This is a different type of post for me …

08/11/2025

We have been here in the hospital for 73 days and even though we have not gone anywhere July has been a month filled with full of positive things and surprise bucket list items we didn’t know we needed. Aurora got Engaged on July 12th. Aurora and Liam met at school and have been together for a year and a half....

We have been here in the hospital for 73 days and even though we have not gone anywhere July has been a month filled with full of positive things and surprise bucket list items we didn’t know we ne…

07/07/2025

A subtle distinction exists between many words, and we frequently find ourselves navigating these nuanced differences in our lives. I seem to walk between many and one that comes to mind lately is the thin line between optimism and denial. Optimism is holding hope that something is going to change, and miracles can occur every day. Denial serves as a protective mechanism, allowing the mind to gradually process overwhelming realities....

A subtle distinction exists between many words, and we frequently find ourselves navigating these nuanced differences in our lives. I seem to walk between many and one that comes to mind lately is…

06/19/2025

Aurora & Harley Talking is hard for me, so I write. Writing helps to clear my thoughts; it’s my way of venting and not have the same tear-jerking conversation on repeat. If I don’t answer the phone or get back to you it’s not personal. I read this poem the other day, and I don’t think I could have found one that better describes how I feel....

Aurora & Harley Talking is hard for me, so I write.  Writing helps to clear my thoughts; it’s my way of venting and not have the same tear-jerking conversation on repeat. If I don’t answer…

06/04/2025

Balance is one of those words. It’s trendy and people love to throw it around. We hear it all the time in different parts of our lives whether it’s finding a work/life balance, or a balance between being a parent and our own self-care, or how you spend your money or your time. Like the word breathe, the word balance takes on a much deeper meaning for me....

Balance is one of those words.  It’s trendy and people love to throw it around.  We hear it all the time in different parts of our lives whether it’s finding a work/life balance, or a bal…

05/18/2025

Let’s start with, we didn’t actually crash. We made it to Disney, stayed in a beautiful house and we had a great week. Aurora got to do so many activities that she wanted to. She was able to get a pearl in Japan at Epcot. She ate so many churros and funnel cakes. Aurora and William both took part in the light saber experience, she made a red because she’s embracing her inner Sith....

Let’s start with, we didn’t actually crash.  We made it to Disney, stayed in a beautiful house and we had a great week. Aurora got to do so many activities that she wanted to. She was able to …

03/02/2025

I haven’t written an update in some time because there isn’t much to update. In my world, that's a good thing. Rory of course won’t get better but as of right now, she also hasn't declined further. We had a Pulmonary Clinic this past week and the results of her Pulmonary Function tests were the same as they were in December....

I haven’t written an update in some time because there isn’t much to update.  In my world, that’s a good thing.  Rory of course won’t get better but as of right now, she also hasn& #…

01/23/2025

24 Days Later The title sounds like a scary movie about a virus or a segway in a SpongeBob episode, but it's the number of days we have spent in the hospital. So much can happen in three and a half weeks so to summarize I’ve made a list. 24 days (about 3 weeks) is a long time, and I hope once we are home we don’t have to return for a while....

24 Days Later   The title sounds like a scary movie about a virus or a segway in a SpongeBob episode, but it’s the number of days we have spent in the hospital. So much can happen in thr…

01/10/2025

Aurora has had some recent episodes with vomiting, and each has landed us in Boston Children’s for a week or so at a time. The most recent one happened after we had a wonderful time at dinner and the Nutcracker with our friends, luckily it happened after the performance, so we did get to enjoy ourselves. It was the last night of the performance, and we learned there are special acts not in any of the other shows which made it even more fun....

Aurora has had some recent episodes with vomiting, and each has landed us in Boston Children’s for a week or so at a time.  The most recent one happened after we had a wonderful time at dinner…

05/01/2022

11/09/2018

Loved working with this beautiful family ❤ Family Photography